A long overdue thyroid update – the rollercoaster continues…

A long overdue thyroid update – the rollercoaster continues…

Okay, so following on from my string of thyroid surgery related blogs, this one is probably a little overdue.

I think my last post was a year after my surgery, and needless to say, as is life, the journey has been a bit of a rollercoaster since then.

In December it will have been two years since I had my thyroid removed, and still I am on varying doses of thyroxine, my levels shooting up and about all over the place, and all sorts going on.

It has given me time, however, to reflect on some thoughts post-surgery……

The most recent blood test I had (just over a month ago) I was feeling a bit ‘hyper’ and, shock horror, my levels were a little too high.

Dose reduced, I feel a little better, but am concerned that I was starting to see a bit of a lump reappearing on my neck.

Now, I must at this stage point I am in an extremely ranty stage and everyone keeps telling me I’m being silly as the lump is not noticeable – but to me it is!

I’ve had an ultrasound and the docs have told me it’s just left over thyroid tissue, but it’s still very frustrating after going through surgery to get rid of my goiter that this has reappeared.

So, that in mind, I have concluded…mainly, that my surgery was too rushed.

  • When I had my thryoid operated on, it was still a little too overactive and should have waited longer
  • I was told post-surgery my thyroid was ‘very big and oozing’  (a sign it was not back to normal levels as it should have been?)
  • They took my staples out too soon (less than 48 hours) and that’s why my scar is so wide in the middle
  • If they had not rushed into doing the surgery then I might not have this annoying little bit of thyroid left
  • And finally, that this was never as simple as I thought it would be!

I don’t regret having the surgery, but I do find it very irritating that nearly two years on, I am going to have to be referred back to my specialist, that the goiter I wanted to have removed is reappearing (albeit only a very tiny, barely noticable bit) and that my scar is not the thin line I thought it would be.

Plus, as you can see from the photo below, my goiter really has disappeared and you can’t even really see the lump I can see!

Perhaps I am just in a ranting mood, and I don’t want to put anyone else off what will probably be very simple surgery, just make sure you are 100 per cent ready to go under the knife!

Have you had a similar experience with thyroid surgery? What would you do?



  1. Integrator
    September 24, 2012 / 12:41

    Not sure if it applies to your case, but if high levels of TSI antibodies are present in the blood, the thyroid tissue may grow again in nodular form.
    Although the ultrasound confirma the tissue at the thyroid area, the TC99 or I-121 test should be used to confirm that such tissue is capable of making hormones.
    I realy do not see anly lumps on the right picture; maybe you need to snap it @ midswallow or perhaps make a short video to make it appear!

  2. Andrea Malagonia
    February 26, 2018 / 12:05

    Can you tell us what dose levythroxine you are currently on please

    • Sarah H (GF Blogger)
      February 26, 2018 / 19:49

      I am currently not on any thyroxine – update to come!

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