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Well, what a funny few weeks for bad coeliac disease experiences in the news.
First there was the man who made the news for only being served popcorn on a long-haul flight as a 'gluten free meal'.
Then there was that episode of The Apprentice where a gluten free diner was served fruit salad as a main meal on a £200-a-head corporate day.
Every coeliacs worst nightmare, right!?
And it was all-too familiar. Only this year I went on a nine-hour flight to Cuba where they forgot my gluten free meal (despite me checking three times before even getting on the plane) and was served some fruit from the flight attendants' own stash.
And we've all been there at a corporate event and dreading the moment everyone else gets a lush dessert and we get a plate of sorry-looking for food.
For a giggle, I decided to ask my Instagram and Facebook followers for their worst gluten free dining experiences, and I couldn't believe some of the responses!
So for anyone who is feeling down about a rubbish gluten free meal they were once served, here are some of the best responses I have received...
Fruit salad - and not just for dessert
Fruit salad as a pudding is bad enough, but what about being served a fruit salad for a main course, like the poor coeliac lady on The Apprentice!?
"I’ve been at £100 a head functions where I am given fruit salad as a starter and dessert and the same meal as non GF with the gluten items removed - basically three slices of dry beef or chicken," said one Facebook follower.
It's just not good enough if you ask me!
Being served a jacket potato - with nothing else
It seems quite a few of you have been served a dreaded jacket potato - but being served a jacket potato on it's own just tops it all.
"A jacket potato. Plain. Dry," was one follower's response.
"Plain jacket potato, no cheese, no nothing," said another.
I mean come on, would a little side salad or even some butter kill you!?
Or how about a salad - just the leaves
"On a hen do my dinner was a 'salad'. A bowl of rocket leaves. Nothing else. No dressing," remembers one Instagram user.
And this theme of 'naked' salad tends to be something a lot of people with coeliac disease have been served up at one point in time.
"Literally just lettuce on a plate. That's all they could give me that was gluten free," says another Instagram user. Savage.
Or maybe you prefer tomato?
Why have just a plate of lettuce when you could have, er, a tomato instead!?
I can't believe this was something that more than one person sent to me!
"Tomato salad which ended up being JUST A TOMATO," said one Instagram user.
Another also sent me their experience which consisted of a 'plate of sliced tomatoes'.
I love a tomato and mozzarella salad but the cheese is kind of crucial part!
But wait, some salads are more inventive...
"A salad without seasoning but some gherkins and they still managed to gluten me with that," was the offering one Instagram user sent in.
A Facebook follower had a salad which progressed throughout the days of a conference they were attending:
"In France at a conference a few years ago I got a bowl of green leaves. Nothing else, no dressing, just leaves. Day 2 I got added red leaves."
One poor Instagram user told me they were once served in America with "Iceberg lettuce covered in grated cheese". I don't even know where to begin on that one.
How do you like them apples?
Not sure a tomato is your gluten free dinner of choice? How about being served a nice, juicy… apple!?
And this seems to have happened on more than one occasion.
“I've just been on a tour where they hadn't catered for me at all,” said one Instagram user. “All I could eat was an apple.”
And spare a thought for this poor soul who went on a lovely holiday to Italy: “A restaurant in Florence gave me a whole apple for dessert, not cut up or anything.”
And then there’s being served a plate of pure BS….
There’s nothing better when you have coeliac disease than when you go into a restaurant and the server is really clued up on gluten free food and cross contamination.
Which means, on the flip side, there’s nothing worse than when they think they’re clued up and they’re really not.
One Instagram user said they were served an: “Overcooked (to apparently 'kill the gluten') burger, meat only, with dressing-free salad.”
Don’t even get me STARTED on that ridiculous urban legend that heat kills gluten!
Another follower reported: “After seven years of being gluten free a waitress argued with me that rice was 'made of' gluten.” #Facepalm
The joy of in-flight meals
You’ve never experienced hanger until you’ve boarded a long-haul flight to find there is no gluten free meal for you.
Despite options to request this way before you even step foot on the plane, it seems to be all-too regular an occurrence that coeliacs are left hungry.
One Instagram follower reported being given only a single banana on a long haul flight as they hadn't loaded their gluten free meal.
Another said: “On a seven-hour flight to Boston I was presented with nothing, they forgot my gluten free meal.”
And then there are the accidental glutenings
I think the most concerning thing of all was the amount of people who messaged me saying they had been glutened by restaurants.
“I ordered off a gluten free menu and was served gluten food - wish I was offered fruit salad,” said one poor Instagram user.
Another said their worst experience was: “Being given a whole bowl of glutenous pasta the night before the Great North Run.”
One Facebook user said they spoke to hotel staff and manager to try to get a gluten free option: “I got a bread roll which was not gluten free. So looked at menu again asked for melon for tea. Headed for Tesco promptly afterwards!”
Or just not being served at all
I was also quite shocked that more than one person said they had been either told to leave or the waiting staff had refused service.
“I was turned away all together at a restaurant - one that even used to have a gluten free menu,” said one Instagram follower.
Another said they were: “Told by an ignorant waiter that I better just leave and go elsewhere.” So sad that this happens.
And of course there’s just the bizarre
I’m a firm believer of using my own experience to educate others – I try not to get frustrated and angry at catering staff because I want to help better the experience for those who might visit after me.
However, some people would just make my blood boil! “When a restaurant calls your disease 'a millennial fad' and said 'a bit of gluten will be fine',” said one Instagram follower.
And in another rage-inducing story, one poor person said: “I had a burger brought out to me once with a gluten-y bun after telling them by allergy and when I told them again, the server told me to 'just take it off'.” Sometimes I just despair!
But when all else fails…
Sometimes there is nothing else to do but follow this one Facebook user’s brilliant piece of advice: “I usually go for the gluten free gin and tonic option.” I’ll drink to that.
What is your worst gluten free dining experience?
These experiences really are the worst - but I was sent so many more on top of these! A lot of the stories reflect a similar picture which is a shame.
Think you've got an experience which could top these? Let me know in the comments below!
If you want a giggle, give these other posts a read!
- 14 things that are way too exciting when you’re on a gluten free diet
- 23 stupid things people have said about being gluten free
- 12 things everyone with coeliac disease has done (but may not admit)
- 19 things you’ll only understand if you have coeliac disease
- 13 things every coeliac feels about gluten free chocolate brownies
- 18 things that happen when you eat out on a gluten free diet
Long haul flights are definitely the worst 🥺 I got served a small pot of baby food (mashed fruit) when they forgot my gluten free food..... BABY FOOD?! 😭😭😭 worst experience to date. Got to laugh about it I suppose
Janet Constance Bellamy Woodward
Large posh expensive ball gowns event in London, simple looking melon boat for starter...and the same for dessert. Not a happy bunny....or the flight to Sharm where despite frequent checks...no gf food on board. I am also a T2...and went through the reserve stache of meals, reading labels in the hope of there being something....We have a LOT of educating to do,....
Dorchester - warned I was a coeliac, first dish had soya sauce
Natural History Museum corporate event - Guinness sauce
Sheraton on Piccadilly - fried tapioca things that looked like dog turds. They had no idea of it was a shared fryer and were rude after.
Norwegian Air - soya sauce in the gf meal
Delta - never given anything on internal flights, long haul they gave me a salad with soya sauce that was clearly marked 'contains gluten'
Bought Lidgate's gf sausages online - on arrival ingredients said it includes rusk from wheat.
Family events for me are the worst. My stepmother always bakes the most amazing cakes, desserts and biscuits for everyone else and once I was presented with a small tub of the cream cheese frosting. 🙁
On a long haul flight back from St Lucia, all the lucky people who could eat gluten got served a bacon roll. I got served... a rice cake, with some jam.
We were on an 8hr flight and when we requested the gluten free option we were told that they didn’t have any because people didn’t like it - I explained being a coeliac didn’t allow me to be that picky. They then hunted around and came up with a small pot of cous cous?!, a small pot of beans with a gloopy dressing (no idea what was in it?!?), one apple and six grapes - not great, and we had pre-ordered gf food?!?
After I gave birth to my daughter, It was on my records plus a asked for gluten free bread for my toast and tea now when the woman asked do you need separate butter because of cross contamination I thought she seemed clued up about coeliac.
Was sat enjoying my toast (was loving the taste of this amazing 'gluten free bread' untill I went back I to the room where I was served and she said I take it you are only aloud to eat bread with gluten!! I was like well NO who's a celiac and only aloud The bread right!! I had just had a baby and given gluten was so so surprised by this
I have Coeliac Disease and lactose intolerance and I know it's not always easy to feed me. I was going into hospital to have open heart surgery and checked and re-checked that they could feed me. I had red armband to show I had allergies. The people were lovely but I was severely restricted what I was offered, more than once my ordered meal went missing and was regularly offered food I couldn't eat, it was exhausting. I had expected more from a Hospital. I should have been warned because I've often had to bring my own refreshments for after a procedure where you can't go home 'til you had something to eat & drink.